Monthly Archives: April 2024

Back to Basics

Life can be hard enough when you have normal health. But when you add medical treatments in the mix, daily life becomes very deliberate and basic. I look back at what I used to do and wonder how I accomplished so much in 24 hrs.

My mornings used to involve my alarm going off at 5:30 AM with me thinking “I wanna sleep in”, as I shuffled my sleepy self to the shower. I’d rush through the entire morning – getting ready, packing lunches, nagging kids, etc. I’d fly out of the driveway with my son, drop him off at before-school care, and rush through traffic to get to work by 8 AM. I was almost always 5 minutes late. I’d work through a morning of phone calls, emails and people stopping by my office.

Lunch was my break, but not physically. I’d eat and typically go for a mile walk in the park.

Then I’d power through an afternoon of calls, emails, and people interaction to 5 PM. From there I’d race through traffic to get my son from after-care, get home and start dinner. Dinner, clean-up, and parenting all mingled in there. Sometimes I’d fall asleep on the couch by 9 PM (no wonder), and sometimes I’d indulge in wine and snacks and maybe a phone call with a friend or watching a show.

Wow. How impressive I was. For the past 20+ years I’ve been quite literally running my ass off.

Since January, when I had surgery, life has slowed down. When I returned to work from medical leave, it temporarily sped back up. That gave me a sense of normalcy for about 3 weeks and then I started chemo treatments. Life is now very deliberate and slow. I cannot pop out of bed, shower, and immediately caffeinate. My new ritual to pray, hydrate, focus, and determine how much I can handle in a day. That is followed by coffee, but my day is no longer fueled by coffee and chaos. I’m way more intentional about what I choose to do in a day.

Today was one of those days. Yesterday, I went into the office to work for a few hours, and I could feel myself overdoing it. I finally threw in the towel and told my boss I had to leave. I needed a mango smoothie, rotisserie chicken, and a nap. He’s been an absolute angel, allowing me to work both remote and in the office when I’m up to it. I decided that today I did not want to feel overdone. Today I could only handle the basics.

I didn’t sleep well last night and woke up with a terrible headache. My first priority was getting rid of the headache. Going into the office was not going to help that. I hydrated with some organic coconut water and laid under blankies on my couch. When the headache subsided, I made some coffee and toast. My next priority was getting the kids off to school. Next, I texted my lawn guy to see why on earth my yard was still not mowed after more than a week since the last service. It’s been bugging me all week, and I wasn’t about to go all summer having to nag the lawn company – I was ready to switch companies if this is the norm. I usually do all of my own yard work, but chemo has me doing less these days and I’m supposed to stay out of the sun.

Before 9 am, I accomplished getting rid of my headache, getting the kids off to school, and the lawn company magically appeared to mow the lawn. I then started working. My world did not magically combust because I didn’t focus on work first. It got better.

When you get diagnosed with cancer, or anything for that matter, or if something otherwise terrible happens, the first question often seems to be “why?” Why is this happening to me? There may never be a clear answer, but from here it looks like maybe I’m supposed to be paying attention to some very basic things and not let myself be swallowed up for the sake of doing everything I can to burn the candle at both ends.

I think for the past 20 years I’ve been trying to do my best at anything and everything. Now it’s time for me to do my best as some very basic and meaningful things.

Stifle Me Not

In the Thick of It

I’m doing it. I’m halfway through my chemo treatments. Monday was round 2 of 4. Yes, two down, two to go. The actual day of chemo is not hard. And neither is the day after. I’ve been keeping a little notebook of how my days are going and it seems to be that days 3 – 6 are the roughest so far. Yesterday was day 5, and I cried. I looked back in my notebook at what I wrote on day 5 after the first treatment. Yep, I cried. I have two more treatments where I have to be prepared for the emotional dip on day 5.

What a rollercoaster ride this is. Everyone demonizes chemotherapy, but I think all of the other drugs are a big culprit in the process. I think going on and off steroids each treatment messes with me more than the actual chemo. The day before a treatment, you load up on steroids. You continue that the day of, and after, treatment. Also, during treatment, they give you an additional dose through your IV. I’m all hopped up on roids the first 3 days! Then, once I miss the first does of steroids on day 3, I start to go downhill feel like complete crap. The sweating is endless, I feel like a little drunk stumbling around my house, and eating becomes a game.

I’m noticing a pattern. It’s known that you get nauseous or sick during chemo, but I guess no one really steps you through WHY this happens and how you can get through it easier. You get nauseous because eventually your body wants to eliminate all of this hard stuff out of your body. What you do or eat leading up to that first “elimination” is pretty key to how the experience goes. No matter what, your body is going to force out stuff, and you just have to help it along the best you can. I was way more conscious of my food and hydration choices this round, and I really think that helped me. I’m also trying to move around more. Too much sitting is not good. Rest is good, but no movement throughout the day is not good.

Today is a better day than the last week, but today is a tricky day. It’s a day where I feel mentally better, but physically I’m not ready yet. I’m happy to know there was a clearing last time and I can feel the clearing coming this time. My patience has never been so tested in all my life. I’ve never wanted to fast forward through something so bad in all my life. But here I am, in the thick of it.

Although this is hard, I think I’m going to be happy I did this later on. A couple of days ago I woke up and my hair, on my already shaved head, was falling out even more. I needed my 15-year-old daughter’s help with shaving it down more. She didn’t hesitate to help me and patiently helped me shave it down to a zero. I told her how much I appreciated her help and how much I love her. And I told her I’ll be there for her in the middle of the night when she has babies later on and needs help with them. She just said “you better”. And we laughed.

I realized I’m going through this hard time not just to live for me and my kids now, but to also be there for my kids when their days get tougher as adults. I’ve needed my parents more now in my 40s than I did in my teens or 20s. I want that for my kids too.

Stifle Me Not

There’s a Clearing

As much as I don’t love being a person on chemo treatment, not all of the days are bad. Maybe it started out that way, but there’s a clearing. There’s light. It’s not all doom and gloom.

My first week was rough, but the second week was way better. Easter Sunday was the 7th day since my first treatment and I was fine to go to my parents for Easter dinner, eat, and enjoy the kids getting spoiled by their grandparents. It was the kick-off to a good week.

The past couple of days I feel very normal, other than getting tired a little easier than I normally would. I went into work yesterday for the majority of the day. I came home and was tired, but not exhausted. It was a good productive day.

I think the biggest change for me is veering from my normal eating habits. I have to eat small, frequent meals and avoid acidic or citric foods. I like to eat flavorful and even spicy stuff, so this is odd for me. Also, carbonated beverages are not preferred right now. I usually drink a couple of sparking waters a day, but that is just not appealing right now.

What I wasn’t expecting as the days go on is I can adjust. I had adapted to my new normal of fearing nausea and eating only certain things I knew would agree with me, but now that we’re two weeks in, I can mix it up a little. Also, my energy has returned more. I definitely don’t want to go for a run, but doing errands and basic chores are not a problem. I’ve been working at home and gone in the office a couple of times, and it’s all working out.

I’m doing okay. It’s okay. Another day might be a bad day, but there’s a day after that. There’s a clearing, and it feels good to know I can still enjoy myself during this very different season of my life.

Stifle Me Not

Ready or Not, It’s Here

Last Monday was my D-Day, or should I say C-Day, since it was my first Chemo Day. It went unexpectedly well. I was bracing for the worst, and it was the most efficient day. I reported for lab work at 7:45 AM, saw my oncologist right after, and headed into the infusion center by 9 AM. After a 40-minute cocktail of pre-drugs, including steroids, anti-nausea, and Benadryl, I started getting the cancer healing drugs over the next 1.5 hrs. I sat in a comfy heated recliner with my blanket and pillow, and I literally ate snacks the majority of the time.

My dad anxiously stared at me from a nearby chair, trying to read my face and stay as calm as a father in his position could possibly be. We were out the door by 12:30 PM. It was quite amazing. I slept well on night one. My sister stayed the night with me just in case, but all was fine. And then I went on Day 2 for a white blood count injection. I drove to the hospital and back for that, with my nervous sister riding shotgun. We got back home to my mom stopping by. She chattered for 4 hours while I made chicken and asparagus. I slept well on night 2.

I woke up okay on day 3, but by Noon I took a seat in the bathroom and stayed there for awhile. It was gut-wrenching to say the least, and Imodium and Gatorade saved the rest of the day.

Day 4 was full of aches and tiredness. Day 5 and 6 was more of the same. My mouth feels like its coated in muck, my feet and hands occasionally tingle, I get weird twinges here and there, and laying down is preferred most of the time. Nothing really tastes right except for sweet things. All I seem to want is wheat-based and milk-based foods. Vegetables and citric acidy type foods sound like the devil. Even though everything tastes “off”, I have an overwhelming sense of smell. It’s a little too good. I bought new soap, which I usually love, but it’s too strong smelling to use right now. And I can’t wear any perfume or body mist – it suddenly makes me gag.

I’m also having some temperature regulation issues. I’m usually always cold, but after 3 days of steroids, I get so hot, but then after those wore off a few days later, cold cold cold. It’s crazy.

I was doing so well all week without any nausea or vomiting, and then mid-day Saturday after lunch, I was in so much belly pain. Only to see lunch again. That took me about 3 hours to recover with Body Armor and some Zofran.

Day 7 was Easter Sunday, and lucky for me I was able to eat pretty well that day. I was tired all day, but the achiness has subsided. I’m so happy I was able to be with my kids and family for Easter. I appreciated every last drop of that day.

Today it has been officially one week since treatment began. I guess now I have an idea of what to expect the next time. My next treatment is scheduled in two weeks. I’m curious how much I’m going to perk up in between these treatments. Today I successfully took my daughter to a doctor’s appointment and went into work for about 2 hours, but I couldn’t eat anything except a protein shake at the start of the day. I’ve also been working on my laptop from the couch. I’m so thankful that I can work when I can. I’m so grateful that my employer is so understanding.

I’m glad the first round is done, and I can say I’m 25% way through. I’m keeping my eye on the prize – to be done and feel healthy again.

I’ve been playing with my hair, knowing full well it won’t be there for much longer. Trying to take it day by day instead of getting to wrapped up in the anxiety of future happenings.

Stifle Me Not