Category Archives: God

Fighting the Good Fight Against Myself

Breast Cancer, Cancer Sucks, Change, God, Hope, Overthinking, Positive Attitude

It’s one week until I start chemo. I am, quite frankly, terrified.

I know this a last week of normal-as-I-know-it. I thought being diagnosed and having a mastectomy messed with my normal, but I returned to normalish pretty quickly after getting back to work. Returning to work helped me get back into a familiar routine. The worst of it is trying to quiet my mind about what’s next.

I’ve been trying hard not to try too hard. I’m trying to enjoy day as much as possible, but knowing chemo is right around the corner is really messing with me. I feel like I just got my life back from healing from surgery, and I appreciate each good morning. I wake up every morning and feel pretty good, think of what day it is, and immediately think of how many more days I have until I have strong drugs infused into my body. I woke up crying two days in a row, just because I was overwhelmed within my first few thoughts of the day.

Three weeks ago, I started on two drugs: an injection that’s supposed to suppress my ovary function and a daily aromatase inhibitor pill. The pill lowers estrogen levels, which helps to decrease growth of any breast cancer cells. Since getting the injection and being on the pills, I feel an overall difference in my body, energy, joints, etc. The first week was full of head and body aches. It improved by week 2. It’s not the worst, but it’s not a carefree-breezy-feeling-body anymore.

Last week, my doctor told me to stop the pill while I go through chemo and radiation. I’ve felt great since being off the pill for a week. I think my fear is valid. Not only are chemo and radiation going to have their own set of side effects, but there’s no returning to my current “normal”. After the major treatments are over, I’ll be on pills for a good part of the next decade.

The diagnosis I received in November is supposedly the “good kind” that is highly treatable. After learning of my diagnosis, it was immediately followed up with, “but it’s non-aggressive and treatable”. That made me feel better for a little while, until I experienced how the treatment makes me feel. What they don’t tell you is the drugs alter your everything. Your life flips upside down just as much as someone else’s life. In my case, instead of gradually entering into older age, I’m being forced into menopause (and more) all within a few months. This sounds so much simpler than it actually is.

Sounds. So. Simple.

People often refer to cancer patients as “fighters”. The definition of a fighter is someone who doesn’t easily admit defeat in spite of difficulties or opposition. The truth is, yes, you’re fighting, but you’re not fighting anything or anyone but yourself. You’re relinquishing complete control, and that’s the hardest part of the fight. I’m not in control of any of this. Yes, I’m questioning my treatment options along the way and making a few key decisions. But whichever path I take, I’m releasing control and having to trust outside of my own actions.

If you refuse treatment, you give up control of knowing what’s going on in your body. If you agree to treatment, you’re handing control over to doctors and nurses. Even if you’re somewhere in the middle, in which you agree to some treatment and not others, you’re still left with not really controlling a damn thing. Something could get away from you, or someone could screw up something. You’re constantly fighting you own doubts, worries, fears, etc.

So when you hear someone say, “he or she is a fighter”, it’s not untrue. They’ve become masters at fighting their constant thoughts and emotions. This is where mind over matter comes in. I’ve heard about this, but I see it now. I see how you have to keep your attitude going in a more positive direction to influence your physical well-being.

A mental battle I keep encountering is handling other people’s thoughts and emotions too. Not everyone operates the way I do, and that can frustrate me. I’ve already overanalyzed every possible thing about my treatment, so when someone else does it in front of me, I’m already over it. I don’t want to discount their valid feelings, but I also don’t want to spend more time on something I’ve already conquered in my own mind. I don’t want to be set back.

Something that does keep setting me back emotionally, which I really hate, is that I’m upset that my family is helping me out. Don’t get me wrong, I love my family and that they’re there for me. I’m so happy and blessed to have them. But I had a husband once upon a time, and he decided to cheat on me because he’s a selfish narcissist. Now he’s off having fun with his girlfriend, while avoiding serving an important caretaker role in my life. Now, 6 years later, of course I don’t want him to take care of me, but I can’t help but feel like I should be his mess. He should be the one taking me to appointments and worrying about me, but I know if he was here he’d blow the fight right out of me.

So I can’t help but wonder if all of this will have some weird twisty ending in which it was supposed to happen this way. And I continuously go back to God must be mysteriously up to something. I don’t know what it is, and I won’t know what it is for a while. But it’s all for something, even if it doesn’t feel that way.

Stifle Me Not

The Power of a Second Opinion

Breast Cancer, God, Hair, Hope

Today is my last day of medical leave. On Monday I return to work, but it won’t be without more future days out. I thought that going to my oncologist appointment on February 19th would bring great relief. It was quite the opposite. Not only did I not get the treatment recommendation I was hoping for, but I completely refused it and left more confused than when I first started this whole process. I didn’t refuse out of being stubborn, I refused out of being confused. I can’t move forward with something that will affect my health without fully understanding it.

I would have been okay with getting a treatment recommendation I didn’t want if I understood why I was getting it. Up to this point, most signs pointed to no chemo for me. There was so much hype about this oncotype score I got, and when I got a “good” score paired that with the previous conversation with my doctor, I was in complete shock when she walked in the door and started reading from her computer (rather than looking me straight in the face) that “it is recommended that you get chemo”. Of course I questioned it. And she kept saying “it will be really strong, and over 6 months”. She said “there is a 7% difference between the group that gets the chemo and the group that doesn’t get the chemo”… but she didn’t specify what the 7% really meant. Recurrence? Mortality? I tried asking so many questions, but I was frustrated and couldn’t find all the words. Her answers were not explanations, they were couple-word answers as she peered at me over the top of her mask. I felt crazy. And I just didn’t like her. Her bedside manner quite frankly sucks.

Something about that type of chemo regimen for “early stage” breast cancer just wasn’t sitting well with me. That, paired with the fact that 7% didn’t seem like much of a difference to move forward. Also, that’s not all there is to my “plan”. There’s also radiation, hormone therapy, and an additional cancer drug. I left her office refusing chemo and proceeding with hormone therapy, with radiation scheduled in the coming weeks. I was pissed. I was at peace that I refused her recommendation, but not at peace that I knew enough to be confident in my decision for the long term.

I got a recommendation from my cousin for a second opinion. The next day I immediately called to schedule an appointment. They got me in one week later, which was yesterday.

I was so nervous. It was a virtual video call. I waited about two minutes for the oncologist to appear. Right away he told me he read my file and asked what the best way was he could help. I told him about my concerns with the chemo recommendation. His response was so clear and so confident. It was just what I needed. He said he did absolutely recommend chemo, but not the kind the original oncologist was prescribing for me. He said her plan was too much for what I actually needed. Her plan involved 6 months of frequent chemo. He was recommending 4 rounds of a less toxic chemo over the course of 12 weeks (once every three weeks). He then explained why it was important to get it. He agreed with the radiation, but he strongly disagreed with the cancer drug she was planning for me.

He was a light a big ray of clarity that I have needed this whole time. He stated his medical opinion (didn’t just read from a computer screen), and he shared why he thought that way, and he referenced facts and statistics.

I wanted him to be my doctor. The only problem is that he’s over an hour away from my home, and its logistically more complicated to be treated by him than to go with a doctor nearby. It’s not impossible, I was about to hop in my car and go to his office after being so pleased with how he communicated. He said he would discuss his approach with my original oncologist if she’d be willing to let me move forward with his treatment plan at my nearby facility.

That was at 3:00 yesterday afternoon. By 10 o’clock this morning, I received a call from my local cancer center scheduling me to move forward with his plan, under the direction of my original doctor. So they worked it out. I’m not jumping over the moon, because who wants chemo? I don’t think anyone is jumping for joy for getting an infusion, but I’m pleased with the outcome.

I now have clarity. I now have a plan. I hate confusion. I know there are no guarantees with any decision you make, but I’d at least like to have some amount of confidence I’m moving in the right direction for my own well-being.

I know I type this anonymously, so no one knows what I look like. I have fairly long dark brown hair. It has never been dyed, so it has strands of silver “tinsel” throughout it. I’ve always really liked my hair. I’ve had it short, as in a long bob, a few times in my lifetime, but for the most part, it’s part of who I am. It air dries in soft waves around my face, or sometimes I use the blow dryer and hair straightener to smooth it out. Either way, it looks natural and has always been part of me. I should probably be more worried about all of the drug side effects other than hair loss, but I’m pretty sad to part with my hair for a little while, no matter how vain that might sound. I also don’t want to see the reactions of others. I just don’t want to deal with it.

I was really hoping I could avoid chemo altogether and not have to worry about this at all. It’s just today that I’m realizing just how much I unconsciously play with strands of my hair while I’m doing other things.

I have a hair appointment already scheduled for tomorrow to cut some length off of it to start. I start chemo in 25 days. I already had a hair appointment set up just because I needed a fresh cut before returning to work, but I think I’m going to chop it off above my shoulders to start to lessen the shock when I do have to shave it off. And I’m not going to try to save it with a cold cap or anything like that. I will start from scratch.

Three months. I keep telling myself that by June, I can begin regrowing my hair.

Today was my last visit to the plastic surgeon for a while. I have an expander in, and it’s expanded to its potential. Now I wait to get real reconstruction after my treatment is all complete.

Cancer diagnosis was 11/23/23.

Mastectomy was 1/22/24.

Chemo will begin 3/25/24.

Radiation should begin June 2024.

Next visit with the plastic surgeon is scheduled 9/12/24. I am hopeful I can get reconstruction before the end of this year.

All of this sucks, but it sucks less knowing that I now have some milestones to achieve rather than living in a world of confusion and frustration. I’ve said a lot of prayers lately, and praying for clarity has been one of them. I stopped trying to pray for certain outcomes. God has a His reasons for those, but I pray He takes away my worry/fear/anxiety and gives me peace and clarity to keep moving forward.

In fact, quick story before I end. On February 22nd, a few days after my disappointing oncologist appointment, I was so distraught. I couldn’t concentrate, I kept crying. I wasn’t sure what to do. I already placed a call to my original doctor’s office about putting in for a second opinion, but I was waiting for the second doctor’s office to call me. I finally grabbed my rosary, looked up what mystery day it was, and started praying – all while sobbing big tears down my face. As soon as I finished the first set of ten beads, my phone rang. It was the second doctor’s office calling to set up my appointment. I was in a little bit of shock, but at that moment I knew I was on this path for a reason and God is watching out for me. I just have to trust Him. So I am.

Stifle Me Not

Getting Ready

Cancer Sucks, God

My life has changed since November 23rd, when I got the news that I’m not “healthy”, even though I’ve been going through life feeling and functioning very well. It’s insane to me that your body can deceive you like that. I know my diagnosis is in the early stages, so feeling well is to be expected, but I guess with cancer you get images of cancer patients in your head and forget that they went through this phase of finding out first, before they got to the treatment phase where you don’t feel well from side effects.

I’ve been knocked down mentally, emotionally, and spiritually many times, but my body has always been there for me. I’ve always been able to count on myself to be physically capable. Knowing that my body isn’t cooperating is throwing me a giant life curveball. I’m used to sucking it up and dealing with just about anything physically (a cold, aches, etc.) because “I’m healthy”. To have someone tell me otherwise is such a shock. I’m angry about this part, I feel tricked by my own body.

I’m equally eager to move forward and stop in my tracks all at the same time. I met with a surgeon, who was wonderful and explained everything very well. I trust that she’ll do a great job. Her team is great as well – all of the nurses explain things in detail and communicate great. My next step is to get an MRI this coming week, followed by a series of appointments to discuss more details of the surgery and meet with the oncologist to dive into the best “treatment plan”.

The purpose of the MRI is to make sure it hasn’t spread anywhere else in my body. Ugh. I will be suppressing the knot in my stomach until I find out more in the results meeting.

In the meantime, I’m gradually telling people who are close to me about my “news”. I’ve had a few weeks to digest this information, so watching a person’s face contort before my very eyes as their brain tries to grasp what they just heard and what it all means is surreal. Sometimes I choke up a little when I tell someone, and sometimes I’m as matter-a-fact as can be. Everyone wants to say “let me know if there’s anything I can do for you” or they immediately dive into a story about someone they know who’s in this situation. I don’t blame them, I used to be the same way.

I won’t have any surgery or treatment done until at least January, so I’m trying to enjoy the Christmas season while I can. Most days I go about my same routine, with occasional tears in my eyes in my car, as I overthink during a drive from home to work or wherever. And then I catch myself being too negative before I know all the information yet, and I scold myself for doing what I know I should not do.

I have two great kids and an army of a family behind me. God has some plan here and I have to trust it. Every bad thing in my life has turned out for the better. I said a prayer not long ago to God, praying that He help me with this breast pain I get each time I go through my female cycle. I’ve always thought it to be “normal” because I’ve had some sort of pain for a long time, but when you deal with something for so long, sometimes you don’t realize just how bad it’s become. It turns out that all along my hormone levels have been very high and they are the cause of this madness. Although breast cancer isn’t really in my family, there are other things that indicate the females in my family have had other issues that relate to high estrogen and progesterone.

This isn’t what I had in mind, God, but I know there’s a reason I’m not seeing yet.

Stifle Me Not

Cancer Diagnosis

Cancer Sucks, Change, God

One week ago turned into one of the worst days of my life. I got a call from the doctor’s office that my biopsy results were ready, and they weren’t good. “There is evidence of cancer”.

Breast Cancer.

I answered my phone, sitting in my office at work. It was the day before Thanksgiving. The nurse’s voice entered my ear canal, but each word just made me freeze more. I could barely speak. I was stunned. She said she’d call me back soon because she had to call my doctor and have an order put in for me to be scheduled with a surgeon.

I hung up the phone and just sat there. I couldn’t function. I couldn’t cry, I couldn’t move. Everyone else in the office was either gone for the long weekend or intently working. No one knew. No one knew a thing except for me. I finished up whatever meaningless task I was working on and left for Thanksgiving break. I was crying a little, but more so trying to make sense of what I just heard. I drove away and called my mom. She sounded devastated and thoroughly surprised. As far as she knows, this doesn’t run in our family.

My head was swirling with how I was going to tell my family. All I could think was I was ruining Thanksgiving. How was I going to tell my daughter and my son? How in the hell is this happening? What is happening? It’s been one week and I’m still trying to wrap my head around this new reality that hasn’t hit me yet. I find myself doing very basic things, like pumping gas, and then I remember I have a cancer diagnosis. And I can’t help but wonder how hard this is going to be on me physically and mentally.

I’d like to say I don’t remember the rest of last Wednesday, but I remember it all quite clearly in slow motion. After my mom, I called my ex-husband so he would know when I told my kids. His reaction was stupid. Next, I called my dad and asked if he was home so I could stop over. I didn’t want to drop this news on Thanksgiving, so why not the day before? Ugh.

My dad just knew before I could get all the words out and hugged me. My stepmom came home, and I had to tell her. She was a mess. They held it together while I sat there, but I’m sure they lost their minds once I left. I went home and told my kids my results weren’t good. My daughter was a mess. My son doesn’t completely understand because he’s younger. Lastly, I called my sister and then my brother. I just didn’t want to save this for the Thanksgiving dinner table.

It was horrible telling this news to all of these people I love.

The wonderful nurse called me back when I got home. She scheduled me for an appointment with a surgeon the next week. That appointment has already been moved to another surgeon because my cousin, who is a doctor, insisted I see a different surgeon. Over the past week I’ve had an outpouring of love and support from many people. I dreaded coming into work on Monday because I had to tell my bosses and immediate co-workers. I didn’t have to tell them, but it’s only a matter of time before they need to know anyhow. I’m going to need them. I’m going to need all of them.

So now I wait until I see a surgeon next Tuesday to find out more and “start the process”. I know very little, but I know enough to speculate what is coming. My mind is a fog. I’m doing really dumb things, like I walked into a health food store earlier this week to get a couple things, but once I was in the store, I couldn’t remember what I needed. Luckily, I had it on a list.

I was in a health food store because that’s somewhere I go regularly these days. Over the past three years I’ve dramatically improved my lifestyle. I work out regularly, I avoid processed foods and sugar, I don’t drink much alcohol, I get decent sleep. I do all the things you’re supposed to do. I avoid toxic people, I attend church and try to raise my kids to be good humans, and I try my best at all that I do.

And I end up with a cancerous boob that I have no control over. I was very angry. I don’t have time for this. No one has time for this. I’m angry that my kids are going to have to witness the aftermath of this diagnosis when their mom needs to be there for them the most. By the end of the long weekend, I was less angry and more sad. I did get a lot done this weekend that involved physical labor – putting up Christmas decorations, cleaning up leaves in the yard, cleaning out the basement, etc. I couldn’t sit still, my mind wouldn’t let me.

I want to be mad at God, but I’m just not. I’ve been around the block enough times to know He has some greater plan. It will end in blessings. It always does, but I have to hang in there for the ride.

Stifle Me Not

Circling Back to Where I Started

Change, Church, God, Learning, Love, Perspective Shift, Taking Charge, Trust

I grew up in The Catholic Church. I went to public school, but my dad made sure my butt was in a pew every Sunday, and I was not allowed to miss CCD. I was baptized as a baby, received my First Reconciliation and Communion in the 2nd grade, and in the 8th grade I made my Confirmation. Even though I didn’t go to Catholic school, I learned to fear nuns during my First Communion. Sister Mary Adolph seemed to be missing a part of her name.

My parents divorced right before my Confirmation, so I wasn’t all that into it. I was mostly a self-absorbed, but polite, teenager. I kept to myself, had my small friend group, and mostly stayed out of trouble. My dad ensured we went to church when we were with him. My mom did not. She would waiver. It depended on who she was dating at the time. Overall, I made it out of high school without making any negative life-altering choices. To this day, I credit my father with being a great male role model, even though I hated being dragged to church. I took it as an opportunity to check out boys as they walked up to communion. Why not?

I moved in with my dad my senior year of high school. I couldn’t handle my mom’s irrational decision-making (see: her new husband’s ridiculous rules, like telling me I had a bedtime at 17 years old). No thank you. I chose my own rational biological father’s strict religious household over my step dad’s ego-driven rule book from hell. My senior year was fun, peaceful, and I didn’t do anything stupid. I left for college, looking forward to an even brighter future.

When I got to college, my roommate all but declared she was an atheist. I think she didn’t say the word out loud out of respect for me. I found a Catholic church to attend right off campus and I went a few times during my freshman year. I’m not sure that I went anymore after that. I was too caught up in myself and school and friends and parties. I always believed in God, but church was reserved for when I went home during the holidays.

I met my ex-husband my senior year of college, and he was confirmed in the Catholic church. However, we didn’t go to church unless he came home with me for the holidays. When he proposed, it was a no-brainer that we’d get married in the Catholic church. Once we bought a house, we became members at the nearby Catholic church. We did our Pre-Cana classes there with a priest who could never remember my first name. Finally, we got married at my childhood church. It was an elaborate Catholic mass followed by one drunken reception.

My ex-husband wanted nothing to do with church if it wasn’t a major holiday or a wedding. Sometimes I could get him to go to mass with me on a Sunday here or there, but not often. I mostly gave up on dragging us to church, especially once the kids were born. I had them baptized when the time came. My daughter went to Catholic grade school, and she even got her First Communion. After getting divorced, I just checked out. I wanted nothing more to do with church. I didn’t have the energy to keep my son quiet at church, and my daughter was just “over” being forced to do anymore church after attending Catholic grade school. I chose to do nothing.

In 2018, my kids and I moved in with my religious dad and stepmom and we almost never went to church with them. We lived there for 1 1/2 years and maybe went to church only a handful of times. To me, it wasn’t a good use of time. It felt like I was going to an old people’s club. I had turned my attention to astrology and online tarot readings in the couple of years leading up to that. It was interesting, gave me comfort, didn’t feel so hard, and I “wasn’t sure if it was real anyway”. I had heard that these things weren’t “approved” of by Christianity, but I never opened the Bible or took any steps to lift my ignorance. Ignorance was bliss. I wanted to be left alone.

Fast forward to my past year of Adventures in Online Dating, and I’m brought back to religion. On almost every dating profile, there’s a line item for religion. You can state your religious preference and usually you can filter by it. I’ve selected everything from Christian to Catholic to Spiritual as my label and/or filter. I’ve become more and more aware of how many people identify as Atheist or Agnostic. And I’ve become more aware of how many men state they are Christian, but when it comes to their daily life, they might as well be living in the pits of hell.

When you tighten up the filters on a dating site, you are left with very few if anyone to choose from. It’s made me realize that I’m really missing something in my life: an actual relationship with God and like-minded people. All I’ve ever known is being forced to go to church, not why it was important. Now that I’m trying NOT to mess up the second half of my life, I’m discovering all of these God-less men. I don’t want that again. Been there, done that.

A few weeks ago, I went back to church. I enrolled my kids in Bible study (they aren’t happy, but they’ll thank me later). I also deleted any astrology or tarot card related links, apps, or YouTube subscriptions I had. And I suddenly have an urge to understand Bible readings.

In the midst of all this, I started chatting with a guy who seemed to check off all of the ideal dating boxes… except he doesn’t have church in his life at all. I always ask a new guy if they believe in God. His answer was “absolutely!” and he left it at that. It’s literally the only thing “wrong” with him (well, that and he seems to have a slight obsession with county fairs). If you know me, I don’t do country fairs, ever. We’ve been texting for a few days now, and he left me hangin’ last night. No more responses after we had a short discussion about what was for dinner. It’s been almost 24 hours. I have a clue that this one is over before it started, like many others. He never asked to talk on the phone and never officially asked me on a date. After the exciting “get to know you” phase fizzled out, we didn’t really click. Text messages felt forced. And he already told me he’d be going to a county fair tractor pull this weekend.

I’m sincerely not broken up about this one. He was a pretty positive individual, so that’s rare these days, but I was already trying to figure out my escape route. I had a feeling that Last Call guy wasn’t going to stick. I think he was my Last Wake Up Call to prioritize my dating standards further. Geez, and I thought I couldn’t get any pickier, but here I am: God first, Godless men get to the back of the line.

I usually have all kinds of anxiety when I decide to make a life change like this, but I feel nothing but calm. Calm and confident actually. I guess I’m circling back to where I started.

Stifle Me Not