Today is my last day of medical leave. On Monday I return to work, but it won’t be without more future days out. I thought that going to my oncologist appointment on February 19th would bring great relief. It was quite the opposite. Not only did I not get the treatment recommendation I was hoping for, but I completely refused it and left more confused than when I first started this whole process. I didn’t refuse out of being stubborn, I refused out of being confused. I can’t move forward with something that will affect my health without fully understanding it.

I would have been okay with getting a treatment recommendation I didn’t want if I understood why I was getting it. Up to this point, most signs pointed to no chemo for me. There was so much hype about this oncotype score I got, and when I got a “good” score paired that with the previous conversation with my doctor, I was in complete shock when she walked in the door and started reading from her computer (rather than looking me straight in the face) that “it is recommended that you get chemo”. Of course I questioned it. And she kept saying “it will be really strong, and over 6 months”. She said “there is a 7% difference between the group that gets the chemo and the group that doesn’t get the chemo”… but she didn’t specify what the 7% really meant. Recurrence? Mortality? I tried asking so many questions, but I was frustrated and couldn’t find all the words. Her answers were not explanations, they were couple-word answers as she peered at me over the top of her mask. I felt crazy. And I just didn’t like her. Her bedside manner quite frankly sucks.

Something about that type of chemo regimen for “early stage” breast cancer just wasn’t sitting well with me. That, paired with the fact that 7% didn’t seem like much of a difference to move forward. Also, that’s not all there is to my “plan”. There’s also radiation, hormone therapy, and an additional cancer drug. I left her office refusing chemo and proceeding with hormone therapy, with radiation scheduled in the coming weeks. I was pissed. I was at peace that I refused her recommendation, but not at peace that I knew enough to be confident in my decision for the long term.

I got a recommendation from my cousin for a second opinion. The next day I immediately called to schedule an appointment. They got me in one week later, which was yesterday.

I was so nervous. It was a virtual video call. I waited about two minutes for the oncologist to appear. Right away he told me he read my file and asked what the best way was he could help. I told him about my concerns with the chemo recommendation. His response was so clear and so confident. It was just what I needed. He said he did absolutely recommend chemo, but not the kind the original oncologist was prescribing for me. He said her plan was too much for what I actually needed. Her plan involved 6 months of frequent chemo. He was recommending 4 rounds of a less toxic chemo over the course of 12 weeks (once every three weeks). He then explained why it was important to get it. He agreed with the radiation, but he strongly disagreed with the cancer drug she was planning for me.

He was a light a big ray of clarity that I have needed this whole time. He stated his medical opinion (didn’t just read from a computer screen), and he shared why he thought that way, and he referenced facts and statistics.

I wanted him to be my doctor. The only problem is that he’s over an hour away from my home, and its logistically more complicated to be treated by him than to go with a doctor nearby. It’s not impossible, I was about to hop in my car and go to his office after being so pleased with how he communicated. He said he would discuss his approach with my original oncologist if she’d be willing to let me move forward with his treatment plan at my nearby facility.

That was at 3:00 yesterday afternoon. By 10 o’clock this morning, I received a call from my local cancer center scheduling me to move forward with his plan, under the direction of my original doctor. So they worked it out. I’m not jumping over the moon, because who wants chemo? I don’t think anyone is jumping for joy for getting an infusion, but I’m pleased with the outcome.

I now have clarity. I now have a plan. I hate confusion. I know there are no guarantees with any decision you make, but I’d at least like to have some amount of confidence I’m moving in the right direction for my own well-being.

I know I type this anonymously, so no one knows what I look like. I have fairly long dark brown hair. It has never been dyed, so it has strands of silver “tinsel” throughout it. I’ve always really liked my hair. I’ve had it short, as in a long bob, a few times in my lifetime, but for the most part, it’s part of who I am. It air dries in soft waves around my face, or sometimes I use the blow dryer and hair straightener to smooth it out. Either way, it looks natural and has always been part of me. I should probably be more worried about all of the drug side effects other than hair loss, but I’m pretty sad to part with my hair for a little while, no matter how vain that might sound. I also don’t want to see the reactions of others. I just don’t want to deal with it.

I was really hoping I could avoid chemo altogether and not have to worry about this at all. It’s just today that I’m realizing just how much I unconsciously play with strands of my hair while I’m doing other things.

I have a hair appointment already scheduled for tomorrow to cut some length off of it to start. I start chemo in 25 days. I already had a hair appointment set up just because I needed a fresh cut before returning to work, but I think I’m going to chop it off above my shoulders to start to lessen the shock when I do have to shave it off. And I’m not going to try to save it with a cold cap or anything like that. I will start from scratch.

Three months. I keep telling myself that by June, I can begin regrowing my hair.

Today was my last visit to the plastic surgeon for a while. I have an expander in, and it’s expanded to its potential. Now I wait to get real reconstruction after my treatment is all complete.

Cancer diagnosis was 11/23/23.

Mastectomy was 1/22/24.

Chemo will begin 3/25/24.

Radiation should begin June 2024.

Next visit with the plastic surgeon is scheduled 9/12/24. I am hopeful I can get reconstruction before the end of this year.

All of this sucks, but it sucks less knowing that I now have some milestones to achieve rather than living in a world of confusion and frustration. I’ve said a lot of prayers lately, and praying for clarity has been one of them. I stopped trying to pray for certain outcomes. God has a His reasons for those, but I pray He takes away my worry/fear/anxiety and gives me peace and clarity to keep moving forward.

In fact, quick story before I end. On February 22nd, a few days after my disappointing oncologist appointment, I was so distraught. I couldn’t concentrate, I kept crying. I wasn’t sure what to do. I already placed a call to my original doctor’s office about putting in for a second opinion, but I was waiting for the second doctor’s office to call me. I finally grabbed my rosary, looked up what mystery day it was, and started praying – all while sobbing big tears down my face. As soon as I finished the first set of ten beads, my phone rang. It was the second doctor’s office calling to set up my appointment. I was in a little bit of shock, but at that moment I knew I was on this path for a reason and God is watching out for me. I just have to trust Him. So I am.

Stifle Me Not